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dc.contributor.authorAdegbola, Maxine A.
dc.contributor.authorBarnes, Donelle M.
dc.contributor.authorOpollo, Jackline Gloria
dc.contributor.authorHerr, Keela
dc.contributor.authorGray, Jennifer R.
dc.contributor.authorMcCarthy, Ann Marie
dc.date.accessioned2013-04-24T13:08:10Z
dc.date.available2013-04-24T13:08:10Z
dc.date.issued2012-12
dc.identifier.citationPublished in The Journal of the National Black Nurses Association, 23: 2, 16-23.en_US
dc.identifier.urihttp://hdl.handle.net/10106/11691
dc.description.abstractThe purpose of this qualitative study was to describe the lived experiences of adults with sickle cell disease-related pain. Using a qualitative, phenomenological approach, a purposive sample of 13 African-American adults living with Sickle Cell Disease (SCD) was recruited from a national SCD support group. Participants were asked to describe living with SCD-related pain and their experiences with pain management. Four themes emerged from the data: (1) description of the pain experience, (2) pain scales do not work, (3) managing pain, and (4) managing relationships. Persons living with SCD need comprehensive pain assessment from Health-Care Providers [HCPs], who recognize the impact of pain on their patients’ lives. The findings support further research aimed at the assessment and management of SCD-related pain. HCPs are strategically positioned to improve health outcomes for those with SCD pain by listening to patients’ unique stories and accurately assessing and effectively intervening to promote pain relief for patients living with SCD-related pain.en_US
dc.description.sponsorshipDuring this study, Dr. Adegbola was supported by a NINR Postdoctoral Fellowship “Pain and Associated Symptoms: Nurse Research Training” -T32 NR11147 at the University of Iowa College of Nursing. The research project was supported by a grant from Sigma Theta Tau International, Delta Theta chapter.en_US
dc.language.isoen_USen_US
dc.publisherNational Black Nurses Associationen_US
dc.subjectSickle cell diseaseen_US
dc.subjectPainen_US
dc.subjectPhenomenologyen_US
dc.titleVoices of Adults Living with Sickle Cell Disease Painen_US
dc.typeArticleen_US
dc.identifier.externalLinkhttps://www.uta.edu/mentis/profile/?2484en_US
dc.identifier.externalLinkDescriptionLink to Research Profileen_US


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